Who's in charge now? For survivors, health care is anything but routine.
Survivors need to educate themselves, advocate for themselves, keep current on findings about late effects and update their treatment summary and care plan annually. Many times, they need to educate the PCP provider as well.
“That’s a big assignment, and it’s not always
easy,” says Linda A. Jacobs, PhD, RN, director of the LIVESTRONG
Survivorship Center of Excellence at the University of Pennsylvania’s
Abramson Cancer Center. “You may need help from family or friends. But
the shortage of oncologists and primary care doctors, overwhelmed
practices and changes in insurance reimbursements mean patients have to
take more responsibility for their own care. Things do fall through the
cracks.” Read More